Since we lost our statutory funding we have been totally dependent on fundraising and public donations to finance our work with patients and families. Many people take part in events both big and small to raise money for the Network.

We are grateful for offers to help raise funds and can offer advice and materials, such as T-shirts, collecting boxes and leaflets, for those who wish to organise events for the Network.

If you are considering taking part in, or organising a fundraising event, please contact the Network to discuss how best to organise your fundraising.

To contact us, please click here

Thank you to all our Families and fundraisers.

We received £19,790 from fundraising and in memorium donations in the last financial year. We are so very grateful to all the fundraisers who have run, swum, cycled, climbed, done parachute jumps and much more to raise money for the CJD Support Network, as well as families who have given donations in memory of loved ones.

Without this money the CJD Support Network would not survive and so in our 21st year of providing support to families and professionals, we would like to say a big THANK YOU to everybody who has supported our work in this way. We would like to assure you that every penny will be used in our work supporting families affected by all types of CJD.

Counselling and Support

If you telephone our helpline on 0800 0853527 there is always someone to speak to. We offer emotional support and practical information If you want formal counselling, you can speak to your GP or National Prion Clinic who provide counselling and support by following this link